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UK Biobank: de-identified data on about 500,000 participants found for sale on an Alibaba consumer site

UK Biobank said it found de-identified participant data offered for sale on a consumer website operated by Alibaba.

Disclosed

What happened

  • UK Biobank said it found de-identified participant data offered for sale on a consumer website operated by Alibaba; media reports put it at datasets for around half a million participants. The listings were removed with help from the Chinese and UK governments before any sale, per reports. In March, a Guardian investigation had found confidential health data exposed online on dozens of occasions, mostly via researchers sharing code and data on platforms such as GitHub.
  • Root cause: not fully disclosed; data originates from the approved-researcher access model (how it reached the listing was not confirmed in the sources checked).
  • Attacker: not identified.
  • Response: listings removed; UK Biobank statement to participants.